It is such a joy for me to be asked to be the guest editor for Design for All, and I have invited a handful of incredible people to share their perspectives. First, my good friend Steffan Irugalbandara brings to the fore his beliefs concerning failure and the positive steps that may become issues from it.
Currently, I have many close friends who have migrated from Sri Lanka. This brings me to an article that I coauthored where we talk about my friendships, Sri Lanka’s devastating effects upon that country from the civil war and the tsunami which still has a profound effect upon the friends who have encouraged me in this article. That being said by way of introduction, we then look more broadly at Sri Lanka and people with severe disabilities.
Next is a book review from a dear and close friend of mine, Bruce Wearne. Bruce was there throughout every stage of this book and whenever I was in a situation where I was in need of help he was always there, a great friend. Bruce also follows with a brief writing on the social aspects of Friedreich’s Ataxia.
Next my good friends from the Friedreich Ataxia Clinic share their expertise in their respective fields pertaining to the care of Friedreich’s Ataxia. Professor Adam Vogel writes on the complexities of Friedreich’s Ataxia and speech therapy. Associate Professor Louise Corben highlights the strains on mobility that Friedreich’s Ataxia patients endure, and how they can be overcome with suitable, individualised disability equipment. Finally Professor Martin Delatycki gives background on Friedreich’s Ataxia for anyone who wishes to learn about the disability.
And finally, is my book’s abstract which basically runs along the lines of the dangers of organized care becoming careless.
Read it here: Design for All