My book, Six and a Half Years on a Dunghill: Life in Specialist Disability Accommodation, has been reviewed by Frank Stilwell. He is an emeritus professor, and the review has been published on the latest edition of The Journal of Australian Political Economy. Continue reading “Book Review”
On Sunday, I made an official submission to the Royal Commission into Violence, Abuse, Neglect and Exploitation of People with Disability. I feel that my submission is one that needed to be made, as I have suffered from systematic neglect and exploitation for almost 8 years. The following is my submission, which I have reworked for this blog post. Continue reading “Submission to the Disability Royal Commission.”
It has been eight and a half years since I moved into the shared support accommodation facility where I now reside. For socially conservative reasons, pertaining to cost-benefit analysis, there has been a significant, tangible and intangible failure of choice and control. For the past eight and a half years, continuously undergoing the strains of living in this group home has had a detrimental effect on me — as I have written about in previous works.
About a year ago, I was granted access to the National Disability Insurance Scheme (NDIS). The plan I had worked on with several dedicated individuals aimed to be specifically tailored to my particular needs, and for the first time in a long time, I was finally able to experience and feel that I had some choice and control in my life. My NDIS plan covered a lot of areas that my Individual Support Package (ISP) did not, and made provision for assistive technology, transport, home modifications, with an envisaged array of support in other matters as well. In particular, the NDIS has given me greater choice and control through allowing me to be the primary manager of my funds. This way, I get to decide which support workers I hire to take on important roles such as academic support, social assistance and other flexible arrangements. Continue reading “A SIL-ly Situation”
Under the current disability support system that I am a part of, my support provider receives a sum of money from the NDIS, known as the ‘SIL’ (Supported Independent Living). They may have been allocated quite a large amount of money, but as I experience it they treat me in a very flippant manner.
In seeking to treat all people with the same level of care and compassion, is it right to expect an equal outcome from all? Continue reading “A ONE SIZE FITS ALL POLICY DOESN’T FIT ANYONE”
My personal style of communication is inherently linked with the progressive nature of Friedreich’s Ataxia. That is to say, my style of communication is unique to me, as my experience of Friedreich’s Ataxia is unique to me. Some of the factors that affect my communication are dysarthria, nystagmus, severe vision impairment, hearing loss, severe loss of mobility, and other physical abnormalities. These prove to be intensely problematic in terms of my communication, and I have had to work around these factors when I try to keep up my conversations with people. In doing so, I have had to deal with the disappointments of various debilitating stereotypes, stigma, and disutilities which in fact have no basis in reality. Continue reading “IS IT POSSIBLE TO GIVE PEOPLE WITH FRIEDREICH’S ATAXIA RESPECT?”