This 6 ½ years (July 2011 – February 2018) in shared supported accommodation, has had a significant impact on the deterioration of my disability. This attains to using the phrase ‘on a dunghill’ as a description of my life in a shared supported facility. This term of expression gives readers an idea of the ugly reality; of the helplessness, immobility, failure to speak and see; and of course the power of irritation towards the delivery of life circumstances pertaining to the disability sector. This bureaucratic mess is subsequent to a lack of true empathy, which may conflict with any budget bottom line, thus enforcing the creation of social dilemmas which then draws attention away from the original problem. This is something that can also be performed by non-government authorities, as is seen in my own circumstance.
Continue reading “NEW BOOK: Six And A Half Years On A Dunghill”
I am a 55-year-old male, who was diagnosed at 14 with Friedreich’s Ataxia. This is a progressive neurological disorder, which eventually leaves the person with severe socioeconomic and medical problems. Many people, from most walks of life, believe they know best and want to stereotype people with Friedreich’s Ataxia and to tell them what they can and can’t do.
Continue reading “The Individualism of Sex and People with Friedreich’s Ataxia”
In telling this story about my recent ‘bucket-list’ trip, I may appear to come across as being angry; however, I will try my best to paint it in a more light-hearted way.
A ‘bucket-list’ trip is one of those special trips you make during your lifetime. It is something you have always wanted to do before your days come to an end. After my recent experience of planning a special trip away, in this event to Thailand, I may be able to offer some advice for those planning their final bucket trip.
Continue reading “Bucket List Tips: some Pros and Cons”