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Yooralla and the NDIS

This is from the Yooralla NDIS forum I attended last week. My own question is included as well.

A Certain Loss of Control, That is to Make Me Feel Punished.

Are all humans told they must live their lives in the same way? Then what about those humans with severe physical disabilities who are unable to control their own lives, with the dignity of purpose and determination? The different abilities of those in group homes, like mine, that cannot be standardised, but for some ridiculous purpose, usually neoliberal, are. For example this gives me a certain loss of control, which is to make me feel punished.

My Predicament and a Possible Solution

This short statement gives a general understanding of the predicaments that led to my hunger strike:

A Measure I Must Take

A hunger strike to many, is the ultimate stupidity. Because of the hunger strike, I have not really had time to feel like typing, and it felt pretty shit. However, let me weigh up my personal beliefs on the subject.

The Individualism of Sex and People with Friedreich’s Ataxia

I am a 55-year-old male, who was diagnosed at 14 with Friedreich’s Ataxia. This is a progressive neurological disorder, which eventually leaves the person with severe socioeconomic and medical problems. Many people, from most walks of life, believe they know best and want to stereotype people with Friedreich’s Ataxia and to tell them what they can and can’t do.

Bucket List Tips: some Pros and Cons

In telling this story about my recent ‘bucket-list’ trip, I may appear to come across as being angry; however, I will try my best to paint it in a more light-hearted way.

A ‘bucket-list’ trip is one of those special trips you make during your lifetime. It is something you have always wanted to do before your days come to an end. After my recent experience of planning a special trip away, in this event to Thailand, I may be able to offer some advice for those planning their final bucket trip.