This is my new writing blog.
Before I begin, I want to point out that my support provider was witness to a document I signed, regarding DHHS and my personal information. Any information about me should be not be disclosed to any parties, except on my approval.
Here is a letter I received in response to a blog post I had made on 8 April, which was posed as an open letter to the NDIS. In the blog post, I talked about my urgent need to get out of my current living situation. Continue reading “I Respond to the Minister of Social Services”
A man after my own heart of wisdom.
The below is written to give an acknowledgement to professor Martin Delatycki and doctor Louis Corben for their expertise in the medical conclusions of Friedreich Ataxia.
“Dr Peter Gibilisco was diagnosed with Friedreich ataxia at the age of 14 years. He is now 55 years old. Friedreich ataxia is a rare, progressive neurological condition. The main symptoms of the condition include initial unsteadiness in walking, fatigue, sleep disturbance, incoordination of the upper limbs, reduced balance, reduced hearing, difficulty speaking and significant heart involvement. The affected person eventually loses their capacity to walk and becomes dependent on a wheelchair for mobility. In addition they increasingly require assistance with most personal care tasks as the disease progresses. To date there is no known cure for this life-shortening, devastatingly progressive and debilitating condition. Continue reading “Did I Deserve 7 Years of This Imprisonment?”
I don’t have the capabilities to type on my own, without the assistance of my academic support worker; but, over my 56 years, I have developed a drive to achieve the improbable. Continue reading “3 Hours…”
As a person with a disability, I am often told I have special needs. This may be, but to my mind, it’s more useful to say I have special problems. Continue reading “Innovation and disability – Mark Brown”
I want to know how come I haven’t been contacted by a NDIS planner yet. I am becoming very blind, and you don’t know or understand how difficult it is for me, and how much worse it is becoming.
Am I supposed to just sit here and do nothing but accept the very minimal time I have been allocated the academic supports in order to voice my thoughts? Am I supposed to just sit here and do nothing but accept the inadequate care that I’m given by my disability support provider?
This place is phenomenally having negative side effects on my physiology; it is worsening everyday. For instance, today my vision is so blurred, and thus I’m under extreme pressure to type, what would be considered the most basic of emails. Please, my intelligence needs synergistic human help, that can only be provided through 1:1 support; this is not what is given in shared supported accommodation.
To anyone with a heart, with some compassion, patience and empathy: I really need out. The lifestyle that I am forced to live is very inappropriate under medical and social practices.